tag:blogger.com,1999:blog-3132835283201737746.post8413051267629782305..comments2024-03-28T22:34:28.562-07:00Comments on Fresh Ideas... : Chelsea's DayRenee Weir- Fonteshttp://www.blogger.com/profile/05441908955945141424noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-3132835283201737746.post-40420563880764856382011-09-13T14:36:10.221-07:002011-09-13T14:36:10.221-07:00Forward from Chelsea's Mother;
Dear Family an...Forward from Chelsea's Mother;<br /><br />Dear Family and Friends,<br /> <br />This is probably the hardest letter I've ever written. The only other time when things were just as hard, was when she was first diagnosed at the age of four.<br /> <br />As most of you know, we've had a very tough summer. We almost lost Chelsea due to a heart virus called myocarditis. Chelsea says she did die and saw God. She has been going through major depression, as well as post traumatic stress disorder. She has now faced the reality of her disease. We too have faced the reality - Chelsea may die due to Friedreich's Ataxia.<br /> <br />I have expressed the urgency before, but never before has it been so important. There is finally a drug getting ready to start clinical trials. We need funds to continue these clinical trials. <br /> <br />There is still hope for Chelsea. She has told us that she is not ready to go to heaven and wants to be here with us, here on earth. I still think she has a lot left to do here on earth. <br /> <br />Please, please let's make a difference for Chelsea and all of the other kids who have FA.<br /> <br />We are once again going to participate in Ride Ataxia Philly on October 9, 2011, to raise funds for FA. Please help us make a difference. <br /> <br />To make a donation, click the link below and then go to "Make a Donation."<br /> <br />It is because of the support I receive from my generous family and friends, that our past fundraising efforts through our numerous walks, my triathlon, our bike rides have raised close to a million dollars. Thank you so much for your love, caring, compassion and support. <br /> <br />https://sna.etapestry.com/fundraiser/FriedreichsAtaxiaResearchA/raphiladelphia/individual.do?etapCacheBuster=1315931585773&participationRef=968.0.461182157&shareMedium=label.facebook<br /> <br />Sandy<br /> <br />P.S. Please feel free pass this email to your family and friends.Renee Weir- Fonteshttps://www.blogger.com/profile/05441908955945141424noreply@blogger.com